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It’s been a few weeks since I came home from the hospital. I am so glad that I was able to get 5 home PT (physical therapy) visits, so almost two week’s worth. The day after my last home PT session with J*, I had my outpatient PT evaluation with M* who was one of my primary physical therapists from when I went to Sports Rehab* previously.

The day after I came home from the hospital, my (off again, on again) home health nurse, P*, came by to re-admit me to home health services. Even though I ended up not needing nursing services, this time, P still came. I think that part of the reason she wanted to come by was to see how my leg looked after such extensive reconstruction.

I also think that P wanted to see me do something she’d never seen me do before, to WALK. By the time I started with this agency, I was already having problems with me legs, so she’s never seen me walk! I hope that I will not need home health nursing services again any time soon, but IF I do I know how to reach P!

It is really great having such a fantastic (outpatient) healthcare team! It has taken me over 8 (long) years to assemble such a caring, knowledgeable, and compassionate team. And I don’t just mean my awesome doctors, but also include my home health nurses, nurse specialist, pharmacists (my local chair pharmacy is excellent), special infusion pharmacists, home health physical therapist, and last but not least my fabulous outpatient physical therapists (D* and M).

I feel very fortunate to have such a fantastic outpatient PT place to go to! In high school, I had to go to a PT place further away and HATED going. I hate the physical therapists and didn’t feel that it was in the least bit helpful. What a strong contrast to Sports Rehab that is such a warm environment. I don’t always like the exercises that D and M have me doing (right now that is quad sets), I always try my best. I also appreciate that while they’ll push me, they will also make me stop if/when we find that a certain movement or exercise is causing me a lot of pain/discomfort.

The downside is that in the last several weeks I won’t have hardly any pain DURING PT, but about 6-8 later is when the pain will hit me hard. So it’s messing with my ability to sleep. Because of this, it is really hard to know how much is too much in physical therapy. So I’ve been having a LOT of sleepless nights. Lately, after almost every PT session I will be up that night. That is definitely one side effect I could do without. But I am not letting that stop me from doing my best during each and every PT session.


*since I haven’t had a chance to ask if I could use his/her names I am only using an initial

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