Archive for the ‘doctor’ Category

My Life Monday: Big Scare

I know it has been a couple weeks since I posted a My Life Monday article as I am recovering emotionally from an infection scare. Several weeks ago when I unwrapped my leg from the full leg length brace, I noticed a spot on top of my knee that had opened up along the incision. I was so terrified that another infection was brewing.

My worst fear was that I would need yet another surgery and possible lose my graft. I have gone through so much to get to where I am I just couldn’t bear the thought that I might have to start over. The PA (physician assistant) at my surgeon’s office said that I should continue on antibiotics preventatively, have lab work done, and that I had to come in weekly until it was healed. He also wasn’t sure it there was another infection starting or what was going on.

On my next visit the following week, the opening was definitely smaller and my lab results were fine. So he didn’t think it was an infection, but time would tell. Amazingly the very next day when I looked at my knee the wound had shrunk by almost half. And so by the time I saw my ID (infectious disease) doctor it was scabbed over.

Thankfully on my next visit to the surgeon’s office the wound had completely closed and he said that he’d start letting me bend my knee. Although the first increase on the brace is only 20 degrees which is really not a whole lot, but a start. I return again this week and should have my brace adjusted again, this time to 45 degrees. I’ll then continue to have visits every two weeks until after my brace is set at 90 degrees for two weeks and then should be able to finally ditch this brace.

If things continue to progress on schedule from now on I should be out of this necessary, but obnoxious brace right around Thanksgiving. While I feel quite relieved that this scare wasn’t an infection, I can’t help but feel a little bit anxious about my knee still. Even though there isn’t a rejection risk with this graft as there is with most other types of donor grafts, there is still an infection risk.

Eventually though if a biopsy of my kneecap or tendon were done it would show only my cells it’ll take about 5 years for that to be complete. But the longer I go with no problems, the lower the chance for any complications. So while I definitely feel I dodged a bullet this time I have a feeling I will still feel at least a little bit of unease still until a few more months have passed with no complications.

~Jaclyn~

Adjustments, Slips, and Spills


Tomorrow I head back to the surgeon’s office for yet another one of my bi-weekly visits. While it is a drag having to schlep up to their office and having to often wait hours to see the P.A. (Physicians Assistant) I know it is well worth it.

And I am very lucky to have such a close family friend who is just wonderful company and we often will go out for dinner or something afterwards. That really does help to make the whole experience so much better!
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Today’s the Day! Part 2

I should now be starting my recovery from surgery by the time this is scheduled to post. After having my second port-a-cath removed, I had to have a PICC line (see Part 1) for information about PICCs) placed in order to receive 6 weeks of IV antibiotics. This was the first time I had, had a PICC placed by a PICC nurse and found that this was definitely the better route to go. Since I could continue to administer the IV antibiotics at home, I only had to stay in the hospital for 10 days, which was by far my shortest stay! Picture is of my favorite type of PICC a Bard Solo Double Lumen Power PICC

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Today’s the Day! Part 1


As many of you know, today is the day I go in for major surgery. At the time this is scheduled to post, I should actually be in surgery! While I’m excited to finally be getting my brand new knee-joint, surgery is and of it self, very scary. And I should know, I’ve had 15 surgeries prior to today! All in the last 7 years. Picture is of a single low profile indwelling surgically implanted port. 

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